Saturday, March 10, 2012

Our New Normal

Last week our lives, Noor's more than anyone's, changed forever.  On Wed. night, Noor was diagnosed with Type 1 Diabetes and admitted to the Children's Hospital of Philadelphia.

Unlike Type 2 Diabetes, Noor's condition was caused by a combination of genetics and most likely acquiring a virus which caused her immune system to mistakenly attack her pancreas.  There was nothing Noor (or we) could have done to avoid this happening. 

Noor has found the experience thus far "interesting," and is not at all bothered by the frequent blood checks every few hours nor the multiple daily injections of insulin.  She is annoyed, however, that she needs to wait 2-3 hours between injections to eat.  That will hopefully change as soon as she is allowed to start wearing an insulin pump.  In the meantime, she may still eat everything and anything she wants (type 1 diabetics may eat sugar, and carbs are important for growing bodies), she just needs to eat them within certain windows.

We've been home for a week and are fine-tuning her insulin doses and getting used to our new schedule.  Noor's doctor told her that she can still do everything anyone else can do, except be a commercial airline pilot or join the active military.  She says she can live with those limitations!

Michael is the best dad in the whole-wide-world! He's normalized all the icky stuff and made it fun. They sing a goofy song while she swabs alcohol for her test/injections.  

And all around us spring is showing returning with a vengeance. Noor already found the first tadpole of the season in the creek.

1 comment:

  1. Sending lots of love and light out to you beautiful people.